I have had a 32-year on and off relationship with ME/CFS. At first I was more or less bed-bound and house-bound for two years or so, unable to tolerate light or noise, locked in my own psyche. I was diagnosed, after two and a half years of awful suffering and confusion, in 1993. I changed my life circumstances as soon as I was able to, and staggered along for another few years before making an incomplete recovery. After that incomplete recovery, I had another serious relapse in 2004 and lost another year of functioning before making another hard won and slow recovery. From about 2007 onwards, I no longer chose to speak about myself as having ME/CFS and, while I was careful about certain things, I was highly capable and productive at work as an academic. I was running an international academic journal, running an international network, teaching students, publishing research, and was successfully holding down my life. In 2016, however, I suffered another serious relapse due to workplace structural issues. That began a very determined quest to heal completely, once and for all.